פנינה רייפמן –

יש אישה בשם “פנינה רייפמן” שעושה הרבה פרסום וספייד דייטינג וקוצינג

אבל
לפני כמה שנים אני צלצלתי עליה יהיא אמרה לי שהיא יכולה להבריא את הפיברומילגיה שלי עי שהיא תתן הדרכה. כשאמרתי לה שזה לא יעזור כי זה מחלה פיזית היא צעקה אלי : ” אני רואה למה אלוהים נתן לך את המחלה הזאות”…וסגרה את הטלפון.
תזהרו ממנה. אל תתנו לה כסף!

There is a  business woman “Pnina Reifman”. Who is doing extensive advertising on for clients as a dating coach under gardenofcoaching.

I had a very traumatising experience that with her that I never fully got over and it is connect to fibromyalgia. I feel I should post about it here.

I phoned her a few years ago for an appointment.
I told her that I have problems finding a man due to having Fibromyalgia and severe pain.

She started saying that it was all in my head and her coaching could cure me. I started to raise my voice, because I was upset by her dismissal and told her that councilling isn’t going to cure a physical illness.
She screamed at me:
“I can see why God gave you this illness, you deserve it!” and slammed the phone on me.

I was extremely upset. Actually cried after what she said.

Please avoid this woman and do not hand over money to her.

I have posted this in case someone searches her name on google, though I guess it will do little good.

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Sulforaphane, Nicotine Gum, Curcumin and VNS

Living With Chronic Fatigue Syndrome

Sulforaphane

Sulforaphane is a compound found in high doses within cruciferous vegetables, most notably broccoli sprouts.

Sulforaphane may benefit ME patients due to: broccoli sprouts

  • Being an antioxidant
  • Being Neuroprotective
  • Improving mitochondrial function
  • Protecting against oxidative stress

Sulforaphane is currently being studied to see if it can reduce the bodies Th2 response. Th2 is typically thought to be high in ME patients and a common aim is to shift this part of the immune system to Th1.

A study published in late 2014 that was widely dispersed in the media found that sulforaphane benefitted children with autism. The study authors theorised that it benefited patients by inducing a “fever effect.” It should be noted that this was a fairly small study involving 44 males between the ages of 13 and 27.

There is quite a discrepancy regarding the amount of sulforaphane absorbed into the body depending on the form of sulforaphane or…

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Circa Tel Aviv area on a rare cold rainy day

Things are better since I last wrote.
My physical state is the same but my mood is good. I am even working on a blog in Hebrew about CFS ME but am a bit stuck on it at the moment.
It would be the first ever blog in Hebrew on ME/CFS because at the moment ME does not exist in Israel and CFS is barely ever diagnosed. Even when it is diagnosed, the treatment is “exercise” and “CBT”.

In most large-ish countries or ones with the widespread English language, patients could just look up the treatment on the net when they notice that CBT isn’t making them well, but in Israel with it’s small population and tiny Hebrew language there is nothing except “Fibromyalgia” websites and blogs. In fact “fibromyalgia” alone is what many ME/CFS patients get diagnosed with here in Israel.  You talk to them and they describe their exhaustion and pain but think it is all  fibromyalgia.

Sometimes it’s hard to persuade them otherwise….unless they read enough English to search the English language web and realize that they’ve been misdiagnosed.
My Hebrew is poor but I hope a blog in Hebrew would help this situation a tiny bit. The problem is that I detest writing in Hebrew. I find it difficult, and my brain fog doesn’t help. I keep getting worrid that I am doing it for nothing.

I do sometimes wish that something could be done in this country for ME patients (oops sorry “CFS” patients they’ve decided to call them in order to belittle this illness.)

In Israel’s population 20% are Arab and another 20% are Hareidi Jews. Both those populations tend to live different lives and go to different schools to us in the secular area. I often wonder how people in those 2 groups manage if they get ME, in that some people in those groups are more closed off from the internet.

I would not like them to suffer like I did when I got ME in 1992, the lack of internet and loneliness that entailed was hard and I believed led to my not resting and worsening.
Perhaps my blog would help.

If anyone here is reading from overseas, let me know.

Symptoms and What it feels like to have M.E/CFS

My symptoms of M.E/CFS are:

Exhaustion so bad that I struggle to go to the toilet

Sore throat

Dizziness

Extremely severe Muscle pains and joint pains

Muscle weakness and horrifically painful tender points around the body.

Cold hands feet and extremities including nose

Insomnia

Difficulty falling asleep then lack of quality sleep

Headaches

Severe allergies – I started needing anti allergy duvet covers and vacuum cleaner.

Difficulty with memory

Pale palour

Low blood pressure

POTS, Nausea, Stomach Pain

A feeling that if you don’t lie down you will fall down as your head suddenly feels heavy and needing a rest and dizzy at the same time

A light touch feels like pain or injury.

I can only eat 12 foodstuffs because of intolerances and digestive pain and bowel symptoms from hell.

I used to have swollen glands and low grade temperature the first 2 years of illness that kept coming or going. They have gone.
 

I got ill in 1992. Only in 1995  did I get the diagnosis of M.E that  said it was a physical illnesss from Dr Myhill. This was the same doctor that caused me to have severe digestive problems on top of the above symptoms. That nearly killed me. I will be naming many other doctors in Israel and Britain that damaged me. I believe naming doctors who do harm is important. I am not afraid of being taken to court as frankly no punishment they can throw at me is worse than being ill so severely for so many years.

On bad days I feel  like every cell in my body had a lead weight attached to it.  No words could describe the weakness. It’s a struggle to get food to eat, go to the toilet. On bad days it was like a combination of a flu and how I imagined a hangover would be like with every muscle in your body killing you with agonizing pain. On good days I just feel run down and need a lot of lying down.